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Wednesday, July 27, 2011

New Beginnings II day to day

I've given you the back story to my stroke and now I will try to give you a glimpse into day to day life with a post-stroke survivor.    SURVIVOR being the key word.  Anyone living through a stroke of the magnitude of mine is a  SURVIVOR at a minimum,  Rehab is a bonus.  I have been blessed to be able to begin a new life.  Different from my pre-stroke, but a good one  nonetheless.  Someone asked me the other day  in what way did the stroke affect my day to day activities.  The only way for someone to know without actually having a stroke is to simulate  best as possible so here is how you can do that.  Before going to bed one night, put an oven mitt on one hand and do not take it off for 24 hours   for  NOTHING!..  When you get up, carry a cane or stick in your other hand anytime you are walking anywhere.    Do everything like that, go to the bathroom,   bathe, fix a meal, pour a cup of coffee and carry it to the table or another room.  Get dressed, do household chores,    IF you carry out this assignment and don't cheat even once, you will have a little understanding of how a massive stroke can affect  your   ADLs (activities of daily life). With help from others and some creative adjustments, I am able to get by but my independence took a big hit.
There is much more affected that would be difficult for you to simulate. 1. The loss of peripheral vision to my left keeps me from EVER driving again, creates a perpetual obstacle course as I move about.i.e.  walking into things to my left that I didn't see, reading and not seeing the letters  at the beginning of a sentence are some. 2.severe foot drop which means my toes drag the ground on my left foot while walking which creates a constant trip hazard.  Wearing an AFO (ankle/foot/orthotic brace) helps but doesn't eliminate the problem. 3. spasticity which is the tightening up of your muscle tone to the degree it's very painful and can cause your toes (in my case) or fingers to curl involuntarily on the affected side. Medicine can help this but not fix it. 4. Nueropathy which is nerve pain, severe at times, Those are just a few worth mentioning.

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